Rare Diseases Ireland are looking for examples of the impact of COVID on the care of children living with rare conditions.

A message from the GI Team for CLDI families. Given current knowledge about COVID-19 disease in children it is now difficult to justify cocooning in most children with underlying conditions. The most recent worldwide data suggests children with underlying medical conditions have recovered from COVID-19 no different to a child with no underlying condition. This would include our cohort of patients that have liver disease.